PinnedAbout MeMy name is Andi Last. In March 2015, at the age of 41, I was diagnosed with breast cancer. Not long after, I learned that I have a genetic…Mar 23, 2019Mar 23, 2019
The Mutants are the HeroesThis week, a Black Christian Florida Republican attempted to insult transgender people by calling them “mutants” and “demons.”Apr 15, 2023Apr 15, 2023
Li-Fraumeni Syndrome is Worse Than Getting Hit By a BusFannie’s recent post on the Living LFS blog reminded me of my own analogy. A member of our private support group posted a fun thread of…Aug 8, 2018Aug 8, 2018
CancestryMy dad’s cousin contacted me recently to ask about our genealogy, since I’d done some research into our family tree back in the early…Jul 9, 2018Jul 9, 2018
“You Have Li-Fraumeni Syndrome”People with a new Li-Fraumeni Syndrome diagnosis regularly join our private Facebook group feeling overwhelmed, fearful, scared and sad…Jun 9, 2018Jun 9, 2018
Learning From SurprisesIn the wee hours of December 1, 2009, I took myself to the emergency room doubled over in abdominal pain: gallstones. I was scheduled to…Jun 2, 2018Jun 2, 2018
Brain Tumor? No, Lady GagaI looked up from the drum kit and immediately thought I had a brain tumor.May 24, 2018May 24, 2018
Mutant is not a bad wordI am a mutant. Unlike the X-Men, I don’t have super powers. In fact, unless gene editing becomes commonplace in the next few years, I am…May 3, 2018May 3, 2018
Raise awareness, save livesCoworker: Welcome back! How was your trip? Where did you go?May 1, 2018May 1, 2018