About Me

In March 2015, at the age of 41, I was diagnosed with breast cancer. Not long after, I learned that I have a genetic mutation that gives me a Monster of a rare disorder called Li-Fraumeni Syndrome (LFS), which makes me prone to getting all sorts of different cancers.

My grandmother died at the age of 34 of breast cancer. Her mother died at the age of 47 of breast cancer. My uncle died at the age of 11 of a brain tumor. My father has had multiple primary cancers, but thankfully, he’s still going strong.

Sometimes I use photography, video and writing to deal with having LFS. The video at the end of this post is an example.

Li-Fraumeni Syndrome Facts:

  • LFS “core” cancers are breast, brain, sarcoma and adrenocortical, but LFS can cause cancer anywhere at any age.

source: LivingLFS.org

--

--

I’m a Li-Fraumeni Syndrome genetic mutant, which means I’m susceptible to developing many different types of cancers. I dig photography and (mostly old) music.

Get the Medium app

A button that says 'Download on the App Store', and if clicked it will lead you to the iOS App store
A button that says 'Get it on, Google Play', and if clicked it will lead you to the Google Play store
Andi

I’m a Li-Fraumeni Syndrome genetic mutant, which means I’m susceptible to developing many different types of cancers. I dig photography and (mostly old) music.